Syringomyelia has not been kind to me. It is an autoimmune disorder (AI), which means, it leaves the door wide open for all other AI disorders. Sigh.
If you have read any of my posts, then you know that I have several diagnoses: Syringomyelia, fibromyalgia, arthritis, asthma, cervical degenerative osteoarthritis, kyphosis, and the latest is a thyroid disorder called hypothyroidism. I honestly had no idea that anything was wrong with my thyroid. But now, looking back, I have had symptoms for awhile and just simply, overlooked the symptoms. As you can imagine, I have new symptoms all of the time and it has become easy to take note of the issue, move on. In this case, I went to the dr. in October with some swelling problems in my feet and ankles, nobody knew why...now we know it has been my thyroid. So, I have worked in another new medication. I pray that my levels are better next month.
Two weeks ago, I went to my neurosurgeon for another MRI and exam because I have had increased pain and pressure in my neck and back of head. Although I have a shunt at C5, there is a new syrinx (fluid filled sack) above the shunt and it is quite large, new since December 2013...I have to have another decompression surgery, laminectomy, shunt.....................the recovery of this surgery is pure hell. I am scared. Nervous. I have not schedule the surgery yet because he says that he wants to do it when I am ready, when the pain is no longer tolerable, or (after my next MRI) the syrinx changes negatively.
Every time I go to the Dr. I am diagnosed with a new illness, new medications, new...new...new...
On a positive note, I am having a wonderful weekend with my husband! I love our alone time <3
He understands that I have to have down time when I wake up because the pain is just incredible first thing in the morning, so our days start a little later than he may like, but I'm thankful for his patience. I have slept until 11am most everyday this week, which is terrible because my day is just getting moving when everyone else is winding down. I certainly don't choose to sleep my life away. Today I was awake at 7am!!!
Thank you for reading, supporting. If you are affected by chronic pain, please know that there is still a way to continue on, even when the pain makes you want to quit.
Take care!
Monica
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