I have wondered if it would be easier for others to understand my conditions if they could actually "see" them. Since I don't look sick, it can be hard to understand that, beneath the surface, I have chronic pain, syringomyelia, syringobulbia, Chiari malformation zero, fibromyalgia, arthritis, asthma, kyphosis, degenerative cervical osteoarthritis, and hypothyroidism. This blog was created to "put a face" on these conditions. To help people cope and find support.
Showing posts with label Bad days. Show all posts
Showing posts with label Bad days. Show all posts
February 28, 2015
Take Time to Dance πΆ
I just love this image and the saying, it couldn't be more accurate! No matter what life hands you, listen for the beat and make it yours πΆπ΅πΆ
I wish you plenty...of support, patience, love, & spoons.
((((Gentle Hugs))))
Monica
April 29, 2014
Paralyzed by Syringomyelia
Having a hard day. I slept until 11 am, now it is almost 5 pm and I am still in my pajama's...I hate days like this. My joints feel "antsy", "achy", and my skin is sensitive. I don't feel comfortable in any position...makes me feel broken. My day is wasted. Nothing accomplished. Nothing feels reachable today. Taking a shower feels like my limit. Syringomyelia sucks. My days are either tolerable or completely intolerable. I always feel bad for my family on these days because everything falls to them...as if everything inside of me comes to a halt, paralyzed. Thankfully, my husband is patient and always seems to understand. He saves me.
Today's post is short, to the point. It's a bad day. Another one. If you deal with chronic pain then you can understand what I am dealing with. Days like this make me want to get the surgery over with, get through the hell of recovery, and pray that I have some relief.
Take care,
Monica
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