Hello everyone! I hope that your week has been good to you. I live in Kansas and had the opportunity to enjoy some really beautiful weather, which always raises my spirits, even if my pain can't find it in its heart to ease up. I spent some time outdoors by this small fishing lake near by, where I attempted to do some writing (if you can call three lines much progress) while my family did some fishing. I couldn't take my eyes off of my surroundings! The water was so beautiful! The sun was setting just on the other side, casting its rays across the perfectly still water, in all of its pinks and oranges...I could hear an occasional splash from an excited fisherman's catch, I could hear the squeak of swings and laughter from children at the park, the whir of bicycle tires whizzing by, and the rhythmic sound of walkers and joggers as they passed behind me in silence, probably trying to clear their head of a long day or consider a problem that needs solving. No matter what each person was doing at the park, it was the weather that brought everyone out. Some, like me, were watching each other, maybe trying to see what they were about, while others kept to themselves. This place is perfect for everyone. I hope that everyone who was there, was able to get what they needed and go home feeling better than when they arrived.
I had to share that story because while I was sitting there watching everyone, I realized how much it helped me to be there. To be outdoors, in the sunshine, and not in my home where it can tend to feel closed in, and lonely. I know that so many of you can understand that. I'm sorry for that. I love being by the water! I love peace and quiet so I can think, read, write, sleep, whatever...but that's what brightens my life. I hope that each of you has found something that brings light into your life (other than your beautiful faces!!) because it's so important to keep your spirit bright.
I love his smile <3
For a long time I wasn't a very active part of my own life. After I was diagnosed, I was terrified and not sure of what was going to happen to me next, so I limited my activity. Now, I have had five surgeries and know that more are sure to come. And, for the most part, that's ok. But, I have begun to do things differently. I am bolder, stronger, braver, and ready to take more risks. I am only 38 years old with a lot of life left inside of me and lot of big goals and achievements left to accomplish...I'm determined to make them happen! I believe that having an illness doesn't mean that it has to have me. If in the mean time, things change and I am left physically unable to do some of the things on my list (yes, I have a bucket list) then I will replace those things with more reasonable goals, but I am a person who needs to feel accomplished. And so I will. Be sure to share your story, spread the word about your conditions and help educate others so they will know that you are not to be defined by what you have but that that you are this wonderfully amazing person with so much to offer...however, you have more needs, and special qualities that have to be considered.
Everyday that you're given to fight, is a good day!
I wish you plenty...of love, spoons, support, understanding, and dreams come true!!
(((Gentle Hugs)))
Monica Reents
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